Our family just arrived back in NY after a spending Pesach in Orlando. It was April 29th, 2019 and I had just shared the exciting news of my pregnancy with my 3 children.
Then I got a call from the Doctor. He said that blood test results came back indicating a high risk for Trisomy 21. At first I didn't believe it could be possible, but the doctor encouraged me to go for further testing.
My emotions over the next few weeks were of panic, fear, and suspense. I was completely drained as I made the appts to various doctors and genetic counseling.
Within the next 5 weeks all the results came back confirming this baby does in fact carry an extra chromosome and will have Trisomy 21 < Down Syndrome. He also had significant risk for additional serious health complications.
First I called my sister Sara. We both cried.
I didn't know what to do next I just felt numb.
My husband Yakov thought we should ask a Gadol for guidance. I got in touch with a Gadol Hador and we spoke briefly. Surprisingly he advised that I should terminate the pregnancy due to the medical situation. I was filled with inner turmoil having to make such a decision. After much consideration I made up my mind. I was not going to terminate this baby. Once I made the decision- it felt like a ton of bricks was lifted off my shoulders. I was 17 weeks pregnant and vowed to keep this baby as long as he continued to have a heartbeat and kick inside me.
On Oct 23, 2019 our beautiful gem was born into the world. So pure. So Precious. So Peaceful.
He weighed only 5 lb 10oz.
We named him Alter Yeshaya which means "savior" & "long life." He is a blessing and a joy to our family.
I can't imagine having it any other way.
Shaya is scheduled for heart surgery next month.
Please continue to Daven for him to have a complete Refuah.